Tuesday, February 22, 2011

Tuesday's visit

This is Arlene - Kris, I did not see the nutritionist. When I arrived Bill had been taken down to the 6th floor for dialysis; I kept company with him during the dialysis. He had distressing stomach cramps, but was able to react to the conversation with nods and facial expressions but very little vocalization.  He seemed to enjoy hearing about music at Disney Hall and about Alan Chapman (KUSC announcer), and interested in hearing about Wisconsin and Libya and the earthquake in ChristChurch ---  it distracted him a bit. The dialysis nurse was kind and responsive to his needs.

Once he was back in the room his nurse was busy administering meds and feeding.  A bright silver mylar balloon with "get well" wishes from Janet, who has contributed often to this blog, floated above a table when we returned, along with a cheerful get well card showing a large truck full of chicken soup. He looked at it and smiled.  I wanted to work with him on swallowing but the nurse had gone on a break and the nurse substitute wasn't sure Bill could have ice chips. I had to leave before his regular nurse returned so we did not practice, but at least he had some mouth swabs. He used one of them like a toothbrush.

He looked tired and uncomfortable after dialysis.  It was frustrating for him to try to communicate his wishes and not be able to do so.  Before I left, I wanted to be sure he knew where the button was to call the nurse.

1 comment:

  1. It is so good you could be with Bill during dialysis. I know it is a comfort for him. Ask to see a Registered Clinical Dietitian. They have the specific training you need for Bill. I am sure Kaiser has RD's on staff. It might be helpful to have someone explain Bill's blood work to you. His blood work will have protein levels, and other information about Bill's deficits. It is a road map to what going on with his body chemistry. You may not know why the deficits exist but at least you'll have markers to see what is changing and can develop tentative ideas about what is going on.
    I so appreciate your kind caring for Bill.

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