hello  everyone. i applogize for not writing for days and days. We are moving dad out of his Glendale house. he will go into a nursing/rehab facility after the hospital and then i will rent a smaller place for dad and me to live when we know he's getting out.
Anyway, Sonny, Kris, Elena, Claudia and I have been chipping away at packing, cleaning up and making decisions about Dad's belongings. Lots of work. the last few days my schedule is to make phone calls and faxes connected with his address change and any other business, then i go pack and clean Dad's house, then i go to the hospital. if I'm not totally wiped out i go back to the Glendale house and try to pack or disassemble things there. the nurses keep asking 'where have you been?!' when i get here. we'll be finished with the move soon and i can spend more time at the hospital with him.
He pulled his feeding tube today. yanked it right out. he just got back and he has a fresh tube and he seems much 'happier' right now than the last two days. i said ' dad, they must have you on happy drugs right now' and he smiled and had a silent laugh about it. he's very tired and worn down it seems.
the last few days his food  (or something ) was giving him diarrhea. i asked Anne Finkelstine about it and she got a stool sample and said she'll ask nutrition to find something that will work for him. they have been adjusting his food the last few weeks, trying to find a good combo for him.
he said the pain in his foot and mainly his toes, has switched feet. its his right side, currently.
his cough sounds low and gurgled. he's getting a breathing treatment as needed (nurse  calls specialist in for this). he has alot of mucus always coming up.  i recall reading that many scleroderma sufferers have GERD. talked to Anne Finkelstine about this and she said he's on a medication for this already. she said they are paying attention to his lungs and throat, listening and giving him what he needs as he needs it.